Thursday, May 26, 2016

Max went on his first date!!!


About two months ago, I was wondering about The Church of Jesus Christ of Latter-day Saints Prom. I asked a beautiful young lady in our church if she knew when it would be. She let me know a couple of weeks later and I felt she was the one Max needed to ask to prom. 

Max and I thought about the theme which was western. Max's first idea was to get bales of hay and put them on her doorstep with a sign that said, "Hay want to go to prom with me?" I thought that was an awesome idea, but knew they probably wouldn't want large bales of hay on their front door step. Then, I thought of the idea of putting a basket with something in it. We came up with flowers. 
So Max picked out the flowers and together we came up with this...








Max was so excited about dropping it on her door step. He wanted to make sure to wear his running shoes and to be really quiet when he went up to her door. 


This young lady responded with 





One of Max's rehabilitation goals is to be able to tell something that happened and when he came home from his date he said, Mom the dance was fantastic and Ashlyn was fun ...

From the look of the pictures I think they had a fabulous time together. 
Before the prom his date came with him to his Baseball Banquet dressed in their prom attire. 
All his baseball team was dressed in their uniforms so they really stood out.
 After the banquet his date who is a senior at his high school drove them to the dance.




This young lady is an amazing and a blessing. She is beautiful, smart, and very fun to be around.
 I appreciate her being Max's date to prom. 
What a fun memory he will always have. 

When Max was three, four, five and even twelve I never ever thought he would be capable of dating.

Isn't his date gorgeous?

Friday, March 4, 2016

Max Got Braces


Yesterday, after we walked out of the orthodontist office Max was sure to let me know he had been embraced with braces. He sure has a sense of humor. On the way home he kept asking me if he will ever get use to wearing braces. The last 48 hours have been difficult and he won’t eat anything besides homemade banana bread and soup.

Max takes everything literally and when the orthodontist told him to not eat anything sticky, chewy, crunchy or hard he has decided not to eat. Why you ask, because Max believes everything is sticky, chewy, crunchy and hard. The orthodontist gave him a paper with pictures of everything he should not eat and drink and one was no sugar products. So he has decided not to drink pop or juices.

Max likes routines and one of his routines is to take the same food for lunch every day. He has been taking the same thing for lunch for the last three years. Now that he has braces his routine will be disrupted because he can’t eat corn chip with homemade Salsa anymore, his favorite.

We have been watching several YouTube videos on how to floss and brush braces. Hopefully this will  help him get a better idea of how to floss and brush. I have always been the one to floss his teeth because he can't figure out how to do it. I hope in time he will learn.  So our nightly routine will be changing too with longer dental care.

My prayer is he will eat and get use to the braces.


Friday, November 6, 2015

Mom Get a Vase Ready...

As I was answering the phone from Max’s school I thought…maybe the nurse is calling to let me know I need to pick him up because he is sick or maybe the teacher wanted to let me know about something that had gone wrong when he arrived at school. Negative thoughts filled my mind when I answered the call.
Max says, “Mom get a vase ready…I need a vase.”
I need to hold off on that phone conversation and share what came in the mail a month ago. A letter from Max’s school.
Here is what the letter said,
“Dear Student;
CONGRATULATIONS! You are scholastically eligible for membership in the National Honor Society.
Candidates are evaluated on the basis of leadership, service, character and scholarship; if you wish to be considered for membership, your application and teacher recommendations will be evaluated by the National Honor Society officers and adviser, as well as a faculty council. The faculty council will consider each application and will make the final decision for membership into the chapter of the National Honor Society.
Membership in the National Honor Society is a significant academic honor, as well as a personal achievement.
When I read that letter, I thought, they have to be mistaken. They have made a huge mistake. I question myself under my breath, “My son who lives daily with Autism who needs occupational and speech therapy? Who was non-verbal until the age of 5 and needs help with learning how to spell and still believes in Santa?” Tears formed and poured down my face. They have got to be mistaken him for another student.
I folded the letter and placed it back in the envelope and told myself I can’t share this with Max. It would crush him to see they got him mix up with someone else and I figured he wouldn’t know what NHS was anyway. I can’t tell you how many years I have seen the honor roll student list come through my hands and never did I see Max’s name on that list. I have told myself that Max is already a star because he is amazing in his own way. I don’t need to see him on an honor roll list to know he is extra awesome. It wouldn’t make me love him anymore, because I already love who he is.
Who is Max? He is a teenage boy who believes in Christ, loves baseball, swimming and playing the viola. He loves being a Special Olympics Athlete and eating the same foods everyday for breakfast and lunch. He won’t eat any food that is green (he has been that way since he was 2).
 
Well, the weeks passed and early on a Monday morning I felt the spirit tell me to call his school and see if they had accidentally sent that letter to Max. The words “Yes, your son is eligible for NHS.”  Made my heart burn and I realized that was the same day the paperwork needed to be sent in.
When Max arrived home from school I had him fill out the papers. His second grade hand writing was perfectly placed in the right spots. I don’t know if Max realized what NHS stands for and why he was filling out the paper, but I could tell he was thrilled to do so. We spent the next couple of nights talking about what NHS stands for and my hope was he would be accepted.  
Hope and pray was answered when Max finished his phone conversation with me. “Mom I need a vase for my flower. I got into National Honor Society. They gave me a letter and everything. Oh Mom get the vase ready.”  My heart was filled with joy.
When he walked in the door he held the flower like it was the most beautiful thing in the world and the letter was in his hand too. Here is a part of the letter…
Dear Prospective National Honor Society Inductee;
Congratulations! You have been selected for membership in the high school chapter of the National Honor Society. The NHS has worked hard to bring the accomplishments of outstanding students to the attention of parents, teachers, peers and the community. Chapter across the nation strive to give practical meaning to the Society’s goals of service, character, scholastic achievements and leadership.
Unbelievable that Max would receive this letter because when Max was 4 years old I was told he would never achieve the scholastic abilities of a child above 3rd grade level. I’m pleased to announce Max is in all resource classes and taking algebra. He has been out of an all day self contained class since 7th grade.
For those of you who have a special needs child like my son Max please don’t let anyone tell you they can’t achieve whatever they want to achieve. I can honestly say I never believe what the child psychologist told us. Autism is a different path of life for Max, but he is seeing that he can reach the same destination as anyone else. Only in a different is type of car and the speed it travels.  

Friday, September 11, 2015

THE PRAYERS HE GIVES and THE REQUEST FOR SENSORY DIET


I always love it when Max gives family prayer. And last week’s prayer is one I want to share. His prayer brought warmth and peace with each word he spoke. He said, "Please bless that angels will open the rays of heaven and come and comfort Grandma." He then waited a few minutes before speaking again. "And please help those people 
who say bad words, to stop saying bad words, and to become mature." 

About two months ago Max asked for the sensory diet. I was shocked that he had requested it after he told me he didn’t want it anymore when he was 11.
The sensory diet was given twice a day from the time he was 3 until 11.
I honestly believe it helped him control his behavior and calmed him.

Over the summer Max wanted hugs ten times or more a day and it didn’t matter where or at what time. Times like when I’m in the middle of cooking or at the store. His way of hugging is to squeeze me so tight I can’t breathe.
Since he has been in school the hugs have decreased and I believe what has 
helped is him carrying a backpack all day at school.

The sensory diet that I have been giving him consist of applying deep pressure against the skin, combined with stimulating the receptors in the joints, this is calming for Max. He always takes a deep breath and exhales slowly as I apply my body weight to his back. Now that he weighs as much as me I need to find another 
form of applying the deep compression to his body.
I wish I could borrow Temple Grandin's squeeze machine. 

I think I will research making him a weighted blanket. I have wondered why this sensory issue has come back in full force. The blessing is the behaviors have not.
I have asked his occupational therapist and did research of my own.
Finding it often happens when puberty comes.

Has anyone else had their child who lives with autism request sensory diet
 or hugs when they reached puberty?


  

Max found a butterfly that didn't want to leave him.

Max loved holding the butterfly he found at Camp LoMia.
He tried to get it to fly, but the beautiful butterfly was happy being in Max's hands.